Sickle Cell and the Unequal Realities of Rare Conditions
Sickle cell disease (SCD) is often described as a rare condition. But for many of us, that word feels misleading ....

Dunstan Nicol-Wilson is from London, England, and was diagnosed with the “invisible disorder” sickle cell anemia from birth. Nicol-Wilson has a BSc in bioscience and an MSc in public health (global health). He has spent his career in research governance and is now a clinical project manager. In addition, he is also a freelance columnist and mentor. Nicol-Wilson began advocating for sickle cell anemia in 2018 through various talks, columns, and community outreach. He hopes his advocacy will raise awareness for sickle cell and blood donation, encouraging others to share their stories. Outside of work and advocacy, he loves to travel, try new experiences, and spend time with friends and family. He can be contacted via Instagram and LinkedIn.
Sickle cell disease (SCD) is often described as a rare condition. But for many of us, that word feels misleading ....
About 10 years ago, I signed up for a personal training session. At the time, I wasn't open or honest about having sickle cell ....
One thing I've always been deeply aware of, even as a child, is the emotional toll sickle cell can place not just on me but on those who care for me ....
As the seasons shift from winter's cold to spring's welcoming warmth, I reflect on the challenges and resilience of living with sickle cell anemia, especially during the colder months ....
Being open about my health in the workplace became a turning point in my journey, both professionally and personally.
Whether it's a friend, a colleague, or someone new I meet, at some point, it comes up. Not only do I discuss it, but I also welcome questions.